Unite SMA Feedback Program
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SMA Feedback Program

Your SMA story can help shape better care for everyone.

The SMA community is tight-knit, powerful, and uniquely expert (but you already knew that 😊). Unite is building tools specifically for your community and we need your expertise to get it right.

Here's how to help:

  1. Create your account
  2. Connect your records
  3. Complete the feedback survey
Create your account
For U.S.-based patients and caregivers. Takes 10 minutes.Plus, receive $100 as a thank-you for completing the feedback survey (SMA only)
Private & Secure
Safeguards consistent with HIPAA

What is Unite

All your health records, finally in one place.

If you've spent years navigating appointments at different hospitals, records that don't talk to each other, and providers who have never seen the full picture — Unite was built for exactly that.

  • Consolidate all your records

    Connect records from every provider, hospital, and specialist.

  • See trends over time

    Labs, medications, scores — all in one view.

  • Stop retelling your story

    Walk into any appointment with your full history there.

  • Your data stays yours

    You control what you share, with whom, and when.

Hear from the community

SMA Advocate Shares Why He Uses Unite 

SMA Feedback Program

Share your feedback and get $100

  1. 1

    Create your account

    Free for SMA patients and caregivers. Set up takes just a few minutes.

  2. 2

    Connect your SMA records

    Connect your patient portals. Your Unite account pulls in your records automatically.

  3. 3

    Share your experience

    Complete a short user-feedback survey. Your perspective is what makes this work.

From the community

People who've been there.

  • It was kind of like a feeling of control. Because those are my records. They're about me and my body and my conditions.
    Patient — living with a rare disease
  • I literally had to go into the basement of the hospital to meet this lady and get the records. And it was a whole thing.
    Patient — managing a complex condition
  • Being the advocate for my brother — it would be awesome to have all of his records in one place.
    Caregiver — sibling advocate

A thank-you from us

We value your time.

Feedback from real patients and caregivers is what allows Unite to build tools that are grounded in the SMA experience.

$100

A thank-you for your time and feedback

Exclusive to SMA patients/caregivers who create an account, connect their SMA health records, and complete the short user-feedback survey about your experience.